Event 1: KUVAN
9:00-12:00
designed for 4 yrs. and up
Stephanie Hacker, MS, RD, LDN, CNSC
Metabolic Dietitian,
University of Miami Miller School of Medicine.
Hear Stephanie speak about uncovering the Hidden Symptoms of PKU: Executive Functioning and its Relation to ADHD
Sarah Marshall, PKU
Sarah will discuss the challenges of growing up with PKU and the importance of self-awareness and ownership of her disease. She is inspirational in her perspective of PKU and with her achievements in her life and career.
(More Information Here)
Event 2: PALYNZIQ
Come learn about PALYNZIQ Injection,
a new way to take control of your PKU
1:00-4:00 designed for 18 yrs and older
Speaker: Barbara Burton, MD
Director, PKU Clinic
Speaking about PALYNZIQ Injection Treatment for Adults with Phenylketonuria (PKU)
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